Regulating the unknown. A guide to regulating genomics for health policy-makers
In the absence of appropriate regulation and guidance, the exceptionally detailed type of information on individuals that is generated by genomics may pose a threat to privacy and undermine the concept of risk pooling and the values of universality, equity and solidarity that underpin European health systems by turning potential risks for everyone into likelihoods for a few.
This policy brief provides some hint for effective regulation of genomics and describes the current initiatives. A good summary.
Parov Stelar
